Information about patients’ coronavirus (COVID-19) status may be shared with NHS and other partners involved in their care and treatment, along with:
*Public Health Wales
*The Department of Health
*The Police Force
*Other government departments where it is legally required, or where it is necessary for the protection of public health or management of the outbreak
The lawful basis is GDPR Article 6(1)(c), compliance with a legal obligation, or Article 6(1)(e), that processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority (the provision of statutory health care services).
The exemptions in GDPR Article 9(2)(h) and 9(2)(i) will be applied, that processing is necessary for matters of substantial public interest or for the management of health care systems.
The conditions in paragraphs 2 (management of health care systems), 3 (public health) and 6 (statutory and government purposes) of schedule 1 of the Data Protection Act 2018 are also engaged.
For more information please contact BCU.DPO@wales.nhs.uk
Please find below details of research studies which the Health Board is currently engaged in:
|Long Title||Description||BCUHB start date||Proposed end date||Link to Privacy Notice|
|ISARIC/WHO Clinical Characterisation Protocol for Severe Emerging Infection||The aims of the study include gaining important information about infections which are of public health interest, and finding better ways to manage and treat these infections in the future.||13/03/2020||28/02/2022||https://isaric4c.net/privacy|
|BPSU study - Multisystem inflammatory syndrome, Kawasaki disease and toxic shock syndrome||During April 2020, a number of children became very unwell with symptoms and signs of hyperinflammation and were admitted to the paediatric intensive care units. At present, we do not understand the relationship between SARS-CoV-2 and this new condition, or even if there is one. We will ask paediatricians to report all cases which have features of this multisystem inflammation.||Not available||Not available||https://www.rcpch.ac.uk/work-we-do/bpsu/study-multisystem-inflammatory-syndrome-kawasaki-disease-toxic-shock-syndrome#privacy-notice|
|Neonatal Complications of Coronavirus Disease (COVID-19) Study||This is a national study collecting information about newborn babies who have coronavirus and need medical care or who are born to mothers who have coronavirus. Paediatricians and neonatologists in the UK are asked to report any babies that meet the surveillance case definition to the BPSU every week.||May-20||29/03/2022||https://www.rcpch.ac.uk/work-we-do/bpsu/study-neonatal-complications-coronavirus-disease-covid-19#privacy-notice|
|Postoperative vasopressor usage: a prospective international observational study. Relation to Perioperative Atrial Fibrillation.||Please see information for patients on the below link: https://www.esaic.org/research/clinical-trial-network/squeeze/squeeze-uk/information-for-patients/||Jun-22||10/05/2023||
Study specific privacy information: FAQs | The SuPPORT Project
The HRA protects and promotes the interests of patients and the public in health and social care research: Privacy notice - Health Research Authority (hra.nhs.uk)