The project does involve sharing experiences with others, who you may not have met before and does involve creating a record of your experience via
This information will be safely kept and your consent will be needed before this information is shared.
It is important to say that this can be an emotional experience for those taking part and can draw on memories and feelings that in some cases may be upsetting.
It is important that you do not take part in the project if you feel that this would cause you upset or be unsupportive to any current support you are receiving.
We ask anyone interested in taking part to seek advice from their Doctor or key worker or trusted person before they become involved in the project.
You can leave at any time, and we have made sure everyone will be treated with respect, and have access to support should they need this.
Safe spaces will be provided to discuss experiences.
If you do begin to feel that the project is starting to make you feel emotional and you are thinking about things that have happened in your life more than usual let your project lead know and we can provide you with support.
We will be creating a report to share this work with the health board and members of the public.
In this report we may like to share the full recordings including all aspects of the work we do with you. We will ask for your consent for this at every step of the project.
It is important that you know that this report will enter public spaces and to members of the public. Once the information is in the public spaces we will have no control over how it is shared and used. (You do not have to consent to anything you say being put in this report, we will talk through all the options with you and give you lots of time to think about those)
We could not guarantee its removal from public access and there are risks that comes with this.
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We ask you to consider our consent forms very carefully and to think about the long-term risks of agreeing to share your information in the way described above.
You can still take part in the project even if you don’t want to share any information in the final report.